Fergus Walsh
Medical editor
Camilla Horrox
Global wellness producer
BBC
April Hubbard sits connected nan theatre shape wherever she plans to dice later this year.
She is not terminally ill, but nan 39-year-old capacity and burlesque creator has been approved for assisted dying nether Canada's progressively wide laws.
Warning: This article contains specifications and descriptions immoderate readers whitethorn find disturbing
She is speaking to BBC News from nan Bus Stop Theatre, an friendly auditorium pinch a small nether 100 seats, successful nan eastbound metropolis of Halifax, Nova Scotia.
Illuminated by a azygous spotlight connected a shape she has performed connected galore times before, she tells maine she plans to dice present "within months" of her imminent 40th birthday. She'll beryllium joined by a mini group of her family and friends.
April plans to beryllium successful a "big comfy bed" for what she calls a "celebratory" infinitesimal erstwhile a aesculapian master will inject a lethal dose into her bloodstream.
"I want to beryllium surrounded by nan group I emotion and conscionable person everybody clasp maine successful a elephantine cuddle puddle and get to return my past breath, surrounded by emotion and support," she says.
April was calved pinch spina bifida and was later diagnosed pinch tumours astatine nan guidelines of her spine which she says person near her successful constant, debilitating pain.
BBC's Fergus Walsh meets group successful Canada connected some sides of nan assisted dying debate
She's been taking beardown opioid painkillers for much than 20 years and applied for Medical Assistance successful Dying (Maid) successful March 2023. While she could yet unrecorded for decades pinch her condition, she qualified to extremity her life early 7 months aft applying. For those who are terminally sick it is imaginable to get support wrong 24 hours.
"My suffering and symptom are expanding and I don't person nan value of life anymore that makes maine happy and fulfilled," April says. Every clip she moves aliases breathes, she says it feels for illustration nan tissues from nan guidelines of her spine "are being pulled for illustration a rubber set that stretches excessively far", and that her little limbs time off her successful agony.
We meet April as, almost 3,000 miles away, MPs are scrutinising proposals to legalise assisted dying successful England and Wales. They voted successful rule successful support of those plans successful November 2024, but months of elaborate scrutiny person followed - and further votes successful nan Commons and Lords are required earlier nan measure could perchance go law.
This week, nan BBC witnessed a man's decease successful California, wherever assisted dying laws are acold much akin to those being considered successful Westminster.
Critics opportunity Canada is an illustration of nan "slippery slope", meaning that erstwhile you walk an assisted dying rule it will inevitably widen its scope and person less safeguards.
Canada now has 1 of nan astir wide systems of assisted dying successful nan world, akin to that operating successful nan Netherlands and Belgium. It introduced Maid successful 2016, initially for terminally sick adults pinch a superior and incurable beingness illness, which causes intolerable suffering. In 2021, nan request to beryllium terminally sick was removed, and successful 2 years' time, nan Canadian authorities plans to unfastened Maid to adults solely pinch a intelligence unwellness and nary beingness ailment.
Opponents of Maid show america that decease is coming to beryllium seen arsenic a modular curen action for those pinch disabilities and analyzable aesculapian problems.
"It is easier successful Canada to get aesculapian assistance successful dying than it is to get authorities support to live," says Andrew Gurza, a disablement consciousness advisor and friend of April's.
Andrew, who has cerebral palsy and uses a wheelchair, says he respects April's decision, but tells us: "If my disablement declines and my attraction needs sewage higher, I'd still want to beryllium here. To cognize there's a rule that's saying you could easy extremity your life - it's conscionable really scary."
Andrew Gurza is worried that getting support to unrecorded is excessively difficult successful Canada
Before she was approved for Maid, April was assessed by 2 independent physicians who were required to pass her of ways to alleviate her suffering and connection replacement treatments.
"The safeguards are there," she says, erstwhile we property her astir abnormal group who consciousness threatened by assisted dying, aliases whether Maid is being utilized arsenic a shortcut to amended value care. "If it's not correct for you and you're not starring nan complaint and choosing Maid, you're not going to beryllium capable to entree it unless it's for nan correct reasons," she adds.
There were 15,343 Maid deaths successful 2023, representing astir 1 successful 20 of each deaths successful Canada - a proportionality that has accrued dramatically since 2016 and is 1 of nan highest successful nan world. The mean property of recipients was 77.
In each but a fistful of cases, nan lethal dose was delivered by a expert aliases nurse, which is besides known arsenic voluntary euthanasia. One expert we said to, Eric Thomas, said he had helped 577 patients to die.
Dr Konia Trouton, president of nan Canadian Association of Maid Assessors and Providers, has besides helped hundreds of patients to dice since nan rule was introduced.
The process is nan aforesaid each clip - she arrives astatine nan location of nan personification who has been fixed support for Maid and asks if they wish to spell up pinch it that day. She says nan patients ever nonstop nan process and past springiness her nan "heads up and fresh to go".
"That gives maine an honour and a work and a privilege to beryllium capable to thief them successful those past moments pinch their family astir them, pinch those who emotion them astir them and to cognize that they've made that determination thoughtfully, cautiously and thoroughly," she adds. If nan reply is yes, she opens her aesculapian bag.
Demonstrating to nan BBC what happens next, Dr Trouton concisely puts a tourniquet connected my arm. She shows maine wherever nan needle would beryllium inserted into a vein successful nan backmost of my manus to let an intravenous infusion of lethal drugs.
In her aesculapian container she besides has a stethoscope. "Strangely, these days I usage it much to find if personification has nary heartbeat alternatively than if they do," she tells me.
A database of organisations successful nan UK offering support and accusation pinch immoderate of nan issues successful this communicative is disposable astatine BBC Action Line
Some 96% of Maid provisions are nether "track one" wherever decease is "reasonably foreseeable". Dr Trouton says that intends patients are connected a "trajectory toward death", which mightiness scope from personification who has quickly spreading crab and only weeks to unrecorded aliases different pinch Alzheimer's "who mightiness person 5 to 7 years".
The different 4% of Maid deaths travel nether "track two". These are adults, for illustration April, who are not dying but person suffering which is intolerable to them from a "grievous and irremediable aesculapian condition".
That is successful stark opposition to Labour MP Kim Leadbeater's measure to legalise assisted dying successful England and Wales, which says patients must beryllium expected to dice wrong six months. The Westminster measure would not let doctors to springiness a lethal dose – alternatively patients would person to self-administer nan drugs, usually by swallowing them.
Death via intravenous infusion usually takes conscionable a fewer minutes, arsenic nan lethal narcotics spell consecutive into nan bloodstream, whereas swallowing nan narcotics intends patients usually return astir an hr aliases 2 to die, but tin return considerably longer, though they are usually unconscious aft a fewer minutes.
Dr Trouton told maine she regarded nan Canadian strategy arsenic quicker and much effective, arsenic do different Maid providers. "I'm concerned that if immoderate group can't swallow because of their illness process, and if they're not capable to return nan full amount of medicine because of breathing difficulties aliases swallowing difficulties, what will happen?"
'Canada has fallen disconnected a cliff'
But opponents reason it's being utilized arsenic a cheaper replacement to providing capable societal aliases aesculapian support.
One of them is Dr Ramona Coelho, a GP successful London, Ontario, whose believe serves galore marginalised groups and those struggling to get aesculapian and societal support. She's portion of a Maid Death Review Committee, alongside Dr Trouton, which examines cases successful nan province.
Dr Coelho told maine that Maid was "out of control". "I wouldn't moreover telephone it a slippery slope," she says "Canada has fallen disconnected a cliff."
Dr Ramona Coelho says she wants to thief patients to live
"When group person suicidal ideations, we utilized to meet them pinch counselling and care, and for group pinch terminal unwellness and different diseases we could mitigate that suffering and thief them person a amended life," she says. "Yet now we are seeing that arsenic an due petition to dice and ending their lives very quickly."
While astatine Dr Coelho's room I was introduced to Vicki Whelan, a retired caregiver whose mum Sharon Scribner died successful April 2023 of lung cancer, aged 81. Vicki told maine that successful her mum's last days successful infirmary she was many times offered nan action of Maid by aesculapian staff, describing it arsenic for illustration a "sales pitch".
The family, who are Catholic, discharged their mother truthful she could dice astatine home, wherever Vicki says her mum had a "beautiful, serene death". "It makes america deliberation that we can't endure, and we can't suffer a small bit, and that someway now they've decided that dying needs to beryllium assisted, wherever we've been dying for years.
"All of a abrupt now we're telling group that this is simply a amended option. This is an easy measurement retired and I deliberation it's conscionable robbing group of hope."
'Not a measurement I want to live'
So is Canada an illustration of nan alleged slippery slope? It's surely existent that nan eligibility criteria has broadened dramatically since nan rule was introduced 9 years ago, truthful for critics nan reply would beryllium an emphatic yes and service arsenic a informing to Britain.
Canada's assisted dying laws were driven by tribunal rulings. Its Supreme Court instructed Parliament that a prohibition connected assisted dying breached nan country's Charter of Rights and Freedoms. The hold of eligibility for those who were not terminally sick was successful portion a consequence to different tribunal decision.
In Britain, judges successful nan astir elder courts person many times said immoderate imaginable alteration to nan rule astir assisted dying is simply a matter for Parliament, aft nan likes of Tony Nicklinson, Diane Pretty and Noel Conway brought cases arguing nan broad prohibition connected assisted termination breached their quality rights.
April knows immoderate group whitethorn look astatine her, a young woman, and wonderment why she would die.
"We're nan masters of masking and not letting group spot that we're suffering," she says. "But successful reality, there's days that I conscionable can't hide it, and there's galore days wherever I can't assistance my caput disconnected nan pillow and I can't eat anymore.
"It's not a measurement I want to unrecorded for different 10 aliases 20 aliases 30 years."
Additional reporting by Joshua Falcon.